Rob's Dementia Journey with FTD

Rob went for a memory test recently, and he got 26 out of 30, so he passed the test. They said he had subjective cognitive decline, but if he had gotten 25, or lower, he would have gotten a different diagnosis. They wanted him to see a cognitive neurologist, but Rob said no. He did agree to come back in a year to repeat the test. Rob has been experiencing a lot of the things, for a few years - some days better, some days worse. They suggested that I needed to look for some support in dealing with dementia, since it is all taking a toll on me. I am still working full-time, and worried about us losing his income if he has to stop working. Answering the same question several times a day, trying to have a conversation without him losing track of what we are talking about, is exhausting... Days he calls home because he can't remember how to start the car, or gives up doing things like closing the window, because he can't remember how. Staring at the light switches, trying to figure

  The Alzheimer's Society said I should keep a journal, so that's why I am writing here. I have been writing here and there. Yes, it helps to get my thoughts out. I feel like I am not feeling, maybe sort of numb.  And yet aware of how much this will impact our lives, now that it's "real". I was convinced they would say it's nothing, that there is nothing wrong with him, and that I was over-reacting.  It makes me feel immobilized, and yet feel like I should be doing something, I should be acting/planning/doing!  And yet I cannot think of what that would be.  Money/finances constantly worries me. --------------------------------- Frontotemporal dementia (FTD) or frontotemporal degenerations (or Pick's Disease) refers to a group of disorders caused by progressive nerve cell loss in the brain's frontal lobes (the areas behind your forehead) or its temporal lobes (the regions behind your ears).  Behavior variant frontotemporal dementia (bvFTD) is characteri