Skip to main content

Why I write...

  The Alzheimer's Society said I should keep a journal, so that's why I am writing here.

I have been writing here and there. Yes, it helps to get my thoughts out. I feel like I am not feeling, maybe sort of numb. 

And yet aware of how much this will impact our lives, now that it's "real".

I was convinced they would say it's nothing, that there is nothing wrong with him, and that I was over-reacting. 

It makes me feel immobilized, and yet feel like I should be doing something, I should be acting/planning/doing! 

And yet I cannot think of what that would be. 

Money/finances constantly worries me.

---------------------------------

Frontotemporal dementia (FTD) or frontotemporal degenerations (or Pick's Disease) refers to a group of disorders caused by progressive nerve cell loss in the brain's frontal lobes (the areas behind your forehead) or its temporal lobes (the regions behind your ears). 


Behavior variant frontotemporal dementia (bvFTD) is characterized by prominent changes in personality and behavior that often occur in people in their 50s and 60s, but can develop as early as their 20s or as late as their 80s. 

In behavior variant frontotemporal dementia, the nerve cell loss is most prominent in areas that control conduct, judgment, empathy and foresight, among other abilities.

Comments

Post a Comment

Popular posts from this blog

a not-so-fun experience...

We went grocery shopping yesterday, and first we went to Shoppers Drug Mart to buy pop on sale. We picked up a few more items on sale. We had brought in a cloth shopping bag, so he put our purchases in there. Then we went to the Superstore for the rest of our groceries, and he carried in the plastic bins we use when grocery shopping, and put them into the shopping cart. When I went to put something into the bin while we shopped, I realized he had moved some of the Shopper's purchases (bacon, hotdogs, eggs) into the bins, and brought them in with us! No idea why?? So I am feeling a bit panicky, thinking how will I get them out of the store without having to pay for them again!? I tried to explain the problem to him, so he grabs them and starts heading for the door, saying he will take them back to the car. No! You can't just walk out with them! Visions of him being arrested for shoplifting! So he gives them back to me and takes off to look for the receipt in the car. Back...
Post a Comment
Read more

When I am sick

  I've been up all night in pain and throwing up, and he took my basin away when I finally fell asleep on the couch! I was cleaning the basin out each time so that's not his excuse. So, I woke up so nauseous, discovered it was gone and called out to him. He was just in the next room, but no response. My throat is sore and raspy, but I keep calling. Finally, after about the 10th time, he answers me, and I ask him to bring back my basin. No idea what I am talking about. Argh, I am so nauseous, my throat is so sore, but I try to explain what I need. I pat the couch next to me, explaining the basin I had right here, that you took away. Blank look... Oh, he says finally, you want a cloth. No, the basin! Before I throw up all over the couch! It's hard enough being sick and having to take care of yourself, and the dogs. He is supposed to only be in early stages
Post a Comment
Read more

Tip #4: Keep a “To Go” kit ready and easy to grab

Tip #4: Keep a “To Go” kit ready and easy to grab Your To Go kit should include two main groups of things. Photo courtesy of Pexels. One group will include paperwork, such as: Advance health-care directives such as a Living Will and copies of the medical order forms Common medical orders forms such as the DNR (Do-Not-Resuscitate) and POLST (Physician Orders for Life Sustaining Treatment) A medication list A copy of your medical power of attorney form It’s never a bad idea to have a copy of their ID card and insurance card as well The other main group of things to put inside of your To Go bag are items that will make the ER visit less boring for you and for your person — things that might make you both more comfortable. For you, items like a phone charger, book, snacks and water — maybe a small travel blanket or neck pillow. Also pack a pen or pencil and pad of paper to take notes and document important things. For your person, take something that makes them comfortable or reminds t...
Post a Comment
Read more