Rob's Dementia Journey with FTD

When my husband was diagnosed with FTD, the dr offered meds for memory and for behavioral. My husband declined, and I agreed. We rarely take meds for anything. The memory clinic recently asked for a 6 month update, and I sent them a list of how he has been acting. Most of the time he is fine, cooperative, and reasonable. But he has moments, like yesterday, I didn't turn the corner quick enough for him while driving, so he yelled at me and then refused to talk to me for the rest of the day or do anything for himself. Another time I wouldn't change lanes when he wanted me to, so he didn't speak to me for the rest of the day, and took off as soon as we got home. Fortunately he only went to McDonalds, and I could track him with the Life360 on my phone. Or the time I wanted out of the store when it was packed with Christmas shoppers on a Sunday, figuring I could come back during the week when it was less crowded, he didn't speak to me for 2 days, refused to eat and went to ...

  Apparently "somebody" went into my husband's phone and deleted "all" of his contacts. He is absolutely furious! He is convinced someone stole his phone and deleted all his contacts. I looked thru his phone and only one contact is missing, but he is ranting about how he now has to find and add all of his contacts back. I got him to look up the missing contact (the local tire store) on Google and add it back. A simple thing...

  Funny how it seemed he was doing pretty good till I had to write an update for the memory clinic. I got an email from the memory clinic the other day, and they said it had been 6 months since his diagnosis, and to send an update on how he is doing. I started out... "I think we are doing well, considering. He has started going to the Adult Day program at the Alzheimer's Society once a week. He is able to take care of himself, dressing, bathing, cooking simple meals, etc." Then I started writing out some of the moments... when he was difficult... when he was confused... when he struggled... When it all adds up like that, while yes, we are coping OK, I can see that he is progressing. I was thinking he was maybe stage 3, but after writing all that out, I think he may be in stage 4 or 5. I think we are doing well, considering. He has started going to the Adult Day program at the Alzheimer's Society once a week. He seems to be enjoying it. However, in the week prior to s...