Skip to main content

No memory of appointment

 The other day we went to Rob's doctor to discuss his decision regarding his prostate cancer diagnosis. Rob has chosen not to go ahead with treatment. I told him I would support whatever choice he made.

However, the doctor seems to be pressuring him into the surgery, finally agreeing to do more bloodwork in October to see how it's progressing, but that he would not let him wait too long for the surgery.

This doctor is not yet aware of Rob's cognitive decline diagnosis, and I didn't feel it was my place to tell, at least until we complete the further testing. Rob is resistant to telling anyone.

Also, we had the Alzheimer's Society lady here yesterday to meet and speak with Rob. It went fairly well, but every time she said the word "Dementia", I cringed. I don't think Rob has accepted that diagnosis - he sees a difference between that and cognitive decline.

When she started to talk to him about his appointment at the memory clinic next week, he had no memory of it, and got upset with me when I tried to remind him. He was sure that his only appointment was the follow-up in 2023.

But that changed after his driving incident and being told not to drive until he had further testing.

I reminded him that was why he was off work for a month, so we could get the further testing, and he seemed to remember and calm down.

He talked a lot about how his identity was tied to his job, and who would he be if he could no longer work. (He is only 62, so not retirement age yet)

I was worried that the memory clinic was just going to do the same test they did a few months ago, but the Alz. lady said they would do more extensive tests, so that's good.

Comments

Popular posts from this blog

Conversations with Rob

 Rob:  Where's the relish?? Did you forget to buy some? Me: Yes, I bought a bottle, is it not in the fridge? Rob: No, I looked and it's not! Me: Not in the pantry? Rob: No, it's not there! Me: Well, I am sure I bought one. Soon the whole family is hunting everywhere for the relish. So strange, where could it have gone?? Well, I found the relish. It was on the counter, right next to his hotdogs - where HE put it, right before sending us all hunting for the relish!

The Driving Incident

  Dealing with the guilt, even though I know I did the right thing. On Friday, I sent an email to the memory clinic and reported Rob's driving incident. Today our family doctor called and said the memory clinic sent my email on to him, and the clinic wants to do more testing right away. That's a good thing. But then he asked if Rob knew I had sent the email. Had I discussed the incident with him? (I tried but got nowhere). How was he going to react? (He has been getting violent when he gets frustrated lately) They are likely going to take away Rob's driver's license, which means he may lose his job - and it feels like it's all my fault. I had been up all night long terribly sick when the doctor called and wasn't so coherent myself. But you have to perk up, make sense, remember details, and make arrangements, no matter how you feel. I feel like I am sneaking around behind Rob's back, and I want to go hide in a hole and not deal with any of this. — feeling ov...

All About Rob

  You asked me to let you know what you need to watch for with Rob. I really do not like to talk about him, when he is listening. He gets upset, and then I have to deal with his anger. I prefer to keep him happy as much as possible, That can be a full-time job in itself. Since he will be in a familiar place, he will probably be just fine. Changes in his routine can get him agitated, but most of the time he is pretty good. Most of the time he is quite jolly, can be the "life of the party", which is not who he used to be! LOL If he does get agitated, he might simply refuse to talk to anyone. I have learned to ignore him when he gets like that, and he usually gets over it. Other times, he has suddenly stormed out of the house and taken off. Fortunately I have a Life360 app on my phone, that I can track him, and know where he is. I usually just let him come home when he is ready. Sometimes, if he gets frustrated about being unable to figure out how to do something he used to be a...