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10 Tips for When the Going Gets Rough

 I emailed my support worker at the Alzheimer Society about my week with Rob and his behavior, and she sent me this. I found it helpful, and thought I would share it...



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All About Rob

  You asked me to let you know what you need to watch for with Rob. I really do not like to talk about him, when he is listening. He gets upset, and then I have to deal with his anger. I prefer to keep him happy as much as possible, That can be a full-time job in itself. Since he will be in a familiar place, he will probably be just fine. Changes in his routine can get him agitated, but most of the time he is pretty good. Most of the time he is quite jolly, can be the "life of the party", which is not who he used to be! LOL If he does get agitated, he might simply refuse to talk to anyone. I have learned to ignore him when he gets like that, and he usually gets over it. Other times, he has suddenly stormed out of the house and taken off. Fortunately I have a Life360 app on my phone, that I can track him, and know where he is. I usually just let him come home when he is ready. Sometimes, if he gets frustrated about being unable to figure out how to do something he used to be a...
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Tip #4: Keep a “To Go” kit ready and easy to grab

Tip #4: Keep a “To Go” kit ready and easy to grab Your To Go kit should include two main groups of things. Photo courtesy of Pexels. One group will include paperwork, such as: Advance health-care directives such as a Living Will and copies of the medical order forms Common medical orders forms such as the DNR (Do-Not-Resuscitate) and POLST (Physician Orders for Life Sustaining Treatment) A medication list A copy of your medical power of attorney form It’s never a bad idea to have a copy of their ID card and insurance card as well The other main group of things to put inside of your To Go bag are items that will make the ER visit less boring for you and for your person — things that might make you both more comfortable. For you, items like a phone charger, book, snacks and water — maybe a small travel blanket or neck pillow. Also pack a pen or pencil and pad of paper to take notes and document important things. For your person, take something that makes them comfortable or reminds t...
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Melatonin

 Rob has mentioned that he is having trouble sleeping.  I haven't noticed this, he seems to be asleep whenever I wake up in the night, and I wake up often.  And he goes to bed about 11-11:30 PM, and he sleeps till about 10-10:30 AM. But he says he often lies awake at night, staring at the ceiling. So last night we started him on Melatonin, 5mg, to see if that helps.
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