Rob is wearing Josh's jeans

A funny, not funny moment. When we came back from the meeting on Wednesday, Rob asked me why his pants were so tight? I said, let me check the size - he was wearing my son's jeans! My son wears size 29, when Rob was working, he wore size 34. I knew he had lost weight, but it's scary to think that he could even put on these jeans, but even do them up, and they were not all that tight on him, just snugger than he was used to.

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When do you decide about starting meds?

When my husband was diagnosed with FTD, the dr offered meds for memory and for behavioral. My husband declined, and I agreed. We rarely take meds for anything. The memory clinic recently asked for a 6 month update, and I sent them a list of how he has been acting. Most of the time he is fine, cooperative, and reasonable. But he has moments, like yesterday, I didn't turn the corner quick enough for him while driving, so he yelled at me and then refused to talk to me for the rest of the day or do anything for himself. Another time I wouldn't change lanes when he wanted me to, so he didn't speak to me for the rest of the day, and took off as soon as we got home. Fortunately he only went to McDonalds, and I could track him with the Life360 on my phone. Or the time I wanted out of the store when it was packed with Christmas shoppers on a Sunday, figuring I could come back during the week when it was less crowded, he didn't speak to me for 2 days, refused to eat and went to ...

When I am sick

I've been up all night in pain and throwing up, and he took my basin away when I finally fell asleep on the couch! I was cleaning the basin out each time so that's not his excuse. So, I woke up so nauseous, discovered it was gone and called out to him. He was just in the next room, but no response. My throat is sore and raspy, but I keep calling. Finally, after about the 10th time, he answers me, and I ask him to bring back my basin. No idea what I am talking about. Argh, I am so nauseous, my throat is so sore, but I try to explain what I need. I pat the couch next to me, explaining the basin I had right here, that you took away. Blank look... Oh, he says finally, you want a cloth. No, the basin! Before I throw up all over the couch! It's hard enough being sick and having to take care of yourself, and the dogs. He is supposed to only be in early stages

Tip #4: Keep a “To Go” kit ready and easy to grab

Tip #4: Keep a “To Go” kit ready and easy to grab Your To Go kit should include two main groups of things. Photo courtesy of Pexels. One group will include paperwork, such as: Advance health-care directives such as a Living Will and copies of the medical order forms Common medical orders forms such as the DNR (Do-Not-Resuscitate) and POLST (Physician Orders for Life Sustaining Treatment) A medication list A copy of your medical power of attorney form It’s never a bad idea to have a copy of their ID card and insurance card as well The other main group of things to put inside of your To Go bag are items that will make the ER visit less boring for you and for your person — things that might make you both more comfortable. For you, items like a phone charger, book, snacks and water — maybe a small travel blanket or neck pillow. Also pack a pen or pencil and pad of paper to take notes and document important things. For your person, take something that makes them comfortable or reminds t...

Rob's Dementia Journey with FTD

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